Generalized Pustular Psoriasis
What is Generalised Pustular Psoriasis (GPP)?
Pustular psoriasis is an uncommon form of psoriasis, characterized by active pustules (pus-filled blisters) on your body. It may be either localized to certain areas of the body, such as the hands and feet, or covering most of the body. Generalized Pustular Psoriasis (GPP) is a rare, life-threatening disease that affects about 3,000 patients in the United States. It can cover most of your body, and can cause fever, chills, and severe itching. There are no approved therapies currently available.
What is the Radiance Registry
We are currently recruiting participants with Generalized Pustular Psoriasis to participate in a registry. This registry consists of collecting data on how patients with the same skin disease are doing over a period of time. It is only observational and there is no investigational treatment nor invasive procedures or blood draws involved. The data collection will be done mostly using questionnaires and physical examinations performed by the physician.
The purpose of this registry is to study how these skin diseases progress over time, what treatments are used, how frequently patients require healthcare, what is their insurance coverage, and how it affects the quality of life.
The registry will consist of an observation period of approximately 2 years, including 5 on-site visits every 6 months and 4 phone visits. Visits will take approximately 1 to 2 hours each.