Generalized Pustular Psoriasis

Allowing you to learn more about the Generalized Pustular Psoriasis (GPP) condition,whilst contributing to research.

What is Generalised Pustular Psoriasis (GPP)?

Pustular psoriasis is an uncommon form of psoriasis, characterized by active pustules (pus-filled blisters) on your body. It may be either localized to certain areas of the body, such as the hands and feet, or covering most of the body. Generalized Pustular Psoriasis (GPP) is a rare, life-threatening disease that affects about 3,000 patients in the United States. It can cover most of your body, and can cause fever, chills, and severe itching. There are no approved therapies currently available.

LEARN MORE

What is the Radiance Registry

We are currently recruiting participants with Generalized Pustular Psoriasis to participate in a registry. This registry consists of collecting data on how patients with the same skin disease are doing over a period of time. It is only observational and there is no investigational treatment nor invasive procedures or blood draws involved. The data collection will be done mostly using questionnaires and physical examinations performed by the physician.

GET STARTED

Patient Registry

The purpose of this registry is to study how these skin diseases progress over time, what treatments are used, how frequently patients require healthcare, what is their insurance coverage, and how it affects the quality of life.

Remuneration

Compensation for travel may be available. There will be no cost to you for taking part in this registry. You will be provided with all examinations and medical care related to the registry at no cost to you.

Assessment Time

The registry will consist of an observation period of approximately 2 years, including 5 on-site visits every 6 months and 4 phone visits. Visits will take approximately 1 to 2 hours each.

Evaluation

During your participation, you may be eligible for a clinical trial with a treatment under investigation that would then be discussed with your doctor while you are enrolled in the registry.

Participate in the
Radiance study

Radiance Form

Confidentiality agreement*
You give permission to Innovaderm to use the personal and health information that you include in this form, for the purpose of evaluating your application to participate in this registry. - The personal and health information that we may use includes only the information you voluntarily provided to us in this form. - You authorize Innovaderm to transfer your personal and health information to one of the clinics participating in the registry, which will be presented to you in the next page. - Your personal and health information will not be shared with others without your permission, unless permitted or required by laws governing them. - Please note that you may withdraw your consent at any time, except to the extent that Innovaderm has already acted based on your consent. To revoke your consent, you must write to: Innovaderm Research Inc., to the attention of the Confidentiality Officer, at confidentiality@innovaderm.ca. This consent does not have an expiration date. - Your further authorize Innovaderm to keep your personal and health information in our database, so that we can contact you via phone, email, text message or letter, in order to present you with studies that might be of interest to you. - For further information, please refer to our Privacy Policy.
- YES
- NO
We understand that you didn't agree to the confidentiality agreement of this online questionnaire. If you have concerns or more questions, you can communicate with our Patient recruitment and advertisement specialist at researchparticipant@innovaderm.com or list them in the text area below. Thank you for your interest in our studies.
Enquire
Are you 18 years old or older?*
- YES
- NO
As seen in the image above, have you experience this disease and received a confirmation from a doctor that you have generalized pustular psoriasis? (the registry doesn’t require to have active pustules to participate)*
(show GPP image)
- YES
- NO
Name*
First Last
City*
State/Province*
Zip Code
Phone
Email
Choose a site

Other Clinical Studies | Company Information | Privacy Policy